Committee Details

This NAACCR TF will address issues with the collection and use of cancer surveillance data on, and for, AIAN people. AIAN people have a unique cancer burden, which has been described in several published manuscripts. However, there are also documented difficulties with these analyses (e.g., misclassification of AIAN race in both the numerator and the denominator). With recent changes at NCHS with regards to race data for mortality and the national move towards non-bridged race denominators, we anticipate that these issues will only be magnified. This TF will convene with Tribal partners to discuss and describe some of these issues and provide recommendations to the cancer surveillance community to improve our assessments of the burden of cancer in this population.

The Annual Report to the Nation is a collaborative endeavor by leaders in the cancer surveillance field. Each year representatives from the American Cancer Society, Centers for Disease Control and Prevention, National Cancer Institute, National Center for Health Statistics, NAACCR, and invited scientists analyze the latest cancer rates from NAACCR and other sources to report on the most recent cancer trends in the US. A special focus on a cancer of interest is selected annually for in-depth analysis. These reports are published in scientific journals.

Responsible for evaluating registry data submitted each year during call for data and assigning certification results based on established criteria. 

This NAACCR TF will address issues with the collection and use of cancer surveillance for geospatial epidemiology. The goal of this Taskforce is to support and develop additional infrastructure to enable geospatial analysis and research on contextual and compositional risk factors using both registry and CiNA Data.

The CiNA Statistics WG evaluates the data submitted for inclusion in the CINA products, selects the data for inclusion in the CiNA products, and determines how the data will be presented in the CiNA*Explorer. This WG also provides feedback back to the registry if any issues are identified in their data submission.   

This workgroup will establish a writing network for methods and research papers using CiNA data. This WG will provide opportunities for newer and more established members as coauthors. This WG will be structured as a managing WG with individual subcommittees for each paper topic. 

This WG coordinates the submission for the NPCR, SEER, and NAACCR Calls for Data to ensure statistical comparability while accommodating for the unique data collection aspects of each submission. This WG works to reduce the burden of the multiple submission processes on central registry staff. This WG also keeps all agencies apprised of critical issues or requirements related to the individual CFDs to ensure a high level of collaboration among programs. This WG is responsible for ensuring IMS softwares and tools (Match*Pro, NAACCR*Prep) and Edits are updated and tested prior to start of CFD processing by central registries.

The Data Security and Confidentiality Work Group is tasked with developing, disseminating, and maintaining up-to-date information on confidentiality and security practices for the NAACCR community. The permanence of this group is necessitated by the rapidly changing data security environment.

Generate, or provide links to, resources for CCR community on geocoding and topics related to geospatial analysis of cancer incidence data.

Create resources to support cancer registry work including appropriate population estimates and ABSM. Special focus during this period on releasing previously developed tract-level population estimates, adjusting for loss of bridged-race and issue with Census 2020 due to differential privacy.

This task force is developing the methodology to produce Population Attributable Risk CiNA statistics for inclusion in CiNA Explorer.

The focus of the SM WG is to generate data-driven, original content for social media and the NAACCR Website. The content produced by the SMB WG is intended to promote the use of CiNA data and highlight research being conducted either by our members or using CiNA data. This WG provides opportunties for newer members.

The focus of the RAHT is to create a comprehensive set of resources to support all aspects of data use and research in central cancer registries. The content produced by the RAHT is intended to be an authoritative source to support both new and experienced registry staff.

Using DaRT, this committee evaluates researcher proposals to use CiNA Research Datasets.

This board meets to discuss papers that will be published using NAACCR data.

This WG brings together registries, researchers, research funders, data sharing experts, and key federal stakeholders to discuss requirements, challenges, and solutions related to secondary sharing of cancer registry data, including sharing into data repositories or use in consortium pooling studies. The goal is to better understand the data sharing issues, identify solutions that support the NIH Data Sharing Policy, maximize the impact of registry data, and support NIH-funded cancer researchers while ensuring adequate protection of the registry data.