Research And Data Use Steering Committee
  • Steering Committee
  • Facilitate the expansion of data use for research, cancer prevention and control, and clinical outcomes; and improve access to pooled data across states and provinces for research.

Meeting Minutes 
Subgroups
AIAN Data for Cancer Surveillance Task Force
  • This NAACCR TF will address issues with the collection and use of cancer surveillance data on, and for, AIAN people. AIAN people have a unique cancer burden, which has been described in several published manuscripts. However, there are also documented difficulties with these analyses (e.g., misclassification of AIAN race in both the numerator and the denominator). With recent changes at NCHS with regards to race data for mortality and the national move towards non-bridged race denominators, we anticipate that these issues will only be magnified. This TF will convene with Tribal partners to discuss and describe some of these issues and provide recommendations to the cancer surveillance community to improve our assessments of the burden of cancer in this population.

Annual Report to the Nation
CiNA Editorial Work Group
  • The CiNA Editorial WG evaluates the data submitted for inclusion in the CINA products, selects the data for inclusion in the CiNA products, and determines how the data will be presented in the CiNA*Explorer. This WG also provides feedback back to the registry if any issues are identified in their data submission.   

CiNA Geographic Work Group
CiNA Monograph Volume VI Task Force
CiNA Research Network Work Group
  • The CRN is a coordinating body for CiNA data use and best practices, primarily through identifying and supporting CiNA-related manuscripts. CRN also provides coordination of these manuscripts for publication and mentor/mentee opportunities for NAACCR members.

Data Security and Confidentiality Work Group
  • The confidentiality and data security work group is tasked with developing, disseminating, and maintaining up-to-date information on confidentiality and security practices for the NAACCR community. The permanence of this group is necessitated by the rapidly changing data security environment.
Fit for Use/Data Assessment Work Group
  • Establish "fitness for use" guidelines to improve data quality/completeness for specific purposes such as cancer control, survival, outcomes evaluation, comparative effectiveness research, and spatial analysis.
Geocoder Technical Work Group
  • A task force to oversee the maintenance and improvement of the NAACCR Geocoder.
Geospatial Resources & Analysis Work Group
  • The Geospatial Resources & Analysis (GRA) workgroup was formed to address the appropriate uses of geographic information systems (GIS) and spatial research in cancer registry practice.

Institutional Review Board
  • This board reviews issues related to the distribution and use of NAACCR data.
NAACCR Talks Work Group
  • Organize periodic research-themed webinars, either as part of regular NAACCR webinar series or something separate.
Population & ABSM Task Force
  • Create resources to support cancer registry work including appropriate population estimates and ABSM. Special focus during this period on releasing previously developed tract-level population estimates, adjusting for loss of bridged-race and issue with Census 2020 due to differential privacy.

Research Analyst Handbook Taskforce
  • The focus of the RAHT is to create a comprehensive set of resources to support all aspects of data use and research in central cancer registries. The content produced by the RAHT is intended to be an authoritative source to support both new and experienced registry staff.

Research Application Review Work Group (RaPR)
  • This committee evaluates applications from researchers wanting to use CINA Deluxe.
Scientific Editorial Board Work Group
  • This board meets to discuss papers that will be published using NAACCR data
Secondary Data Sharing Task Force
Social Media & Blog Work Group
  • The focus of the SMB WG is to generate data-driven, original content for social media and the NAACCR Website. The content produced by the SMB WG is intended to promote the use of CiNA data and highlight research being conducted either by our members or using cancer surveillance data.

VPR Core Work Group
  • Develop a voluntary process to combine limited data from multiple registries to facilitate record linkage research.
Chairperson(s)
Jeff Dowden
  • Newfoundland and Labrador Provincial Cancer Care Program
  • Send Email
Angela Meisner
NAACCR Primary Staff Support
Dr. Recinda L. Sherman
  • North American Association of Central Cancer Registries
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Members
Dr. Kathy Cronin
  • National Cancer Institute
Angela Eckstrand
  • Alberta Cancer Registry
Dr. Susan T. Gershman
  • Massachusetts Cancer Registry
Brenda M. Hofer
  • California Cancer Registry
Christopher Johnson
  • Cancer Data Registry of Idaho
Karen Knight
  • North American Association of Central Cancer Registries
Dr. Margaret Gates Kuliszewski
  • New York State Cancer Registry
Daphne Lichtensztajn
  • Greater Bay Area Cancer Registry UC San Francisco
Dr. Paige Miller
  • Texas Cancer Registry
Dr. Bozena M Morawski
  • Cancer Data Registry of Idaho
Sarah Nash
  • State Health Registry of Iowa
Anne-Michelle Noone
  • National Cancer Institute
Xiaocheng Wu
  • Louisiana Tumor Registry
Manxia Wu
  • Centers for Disease Control and Prevention