Secondary Data Sharing Task Force
  • Task Force

  • This WG brings together registries, researchers, research funders, data sharing experts, and key federal stakeholders to discuss requirements, challenges, and solutions related to secondary sharing of cancer registry data, including sharing into data repositories or use in consortium pooling studies. The goal is to better understand the data sharing issues, identify solutions that support the NIH Data Sharing Policy, maximize the impact of registry data, and support NIH-funded cancer researchers while ensuring adequate protection of the registry data.

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No subgroups are currently listed for this group. If you are the chair of a subgroup for this group and would like your group listed, please contact the NAACCR office at questions2us@naaccr.org
Chairperson(s)
Ms. Castine Clerkin
  • North American Association of Central Cancer Registries
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Members
Pamela K Agovino
  • New Jersey State Cancer Registry
Dr. Laura Beane Freeman
  • National Cancer Institute
Charlisse Caga-anan
  • National Cancer Institute
Marjorie Carter
  • Utah Cancer Registry
Lou Gonsalves
  • Connecticut Tumor Registry
Brenda M. Hofer
  • California Cancer Registry
Elizabeth Hsu
  • National Cancer Institute
Dr. Tabassum Insaf
  • New York State Cancer Registry
Subhashini Jagu
  • National Cancer Institute
Dr. Kristen Keating
  • Westat
Mr. Terence Kelley
  • California Cancer Registry
Karen Knight
  • North American Association of Central Cancer Registries
Sandy Kwong
  • California Cancer Registry
Dr. Tram Lam
  • National Cancer Institute
Angela Meisner
  • New Mexico Tumor Registry
Eric A. Miller
  • National Cancer Institute
Dr. Elizabeth Platz
Dr. Loria Pollack
  • Centers for Disease Control and Prevention
Dr. Freddie Pruitt, III
  • National Cancer Institute
Ms. Daniela Ramirez Aguilar
  • Arkansas Central Cancer Registry
Dr. Dale Sandler
Dr. Pothur Srinivas
Dr. Meir Stampfer
Rita Villazana
  • California Cancer Registry