Standardization And Registry Development Steering Committee
  • Steering Committee
  • Facilitate mission-critical role of NAACCR to prepare central registries to adapt rapidly and successfully to changing developments in cancer surveillance.
Meeting Minutes 
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Team Charter 
Subgroups
Cancer Informatics Advisory Group
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CROS - Central Registry Operation Standards Task Force
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CROS - Subgroup 2 Access to Source Data and completeness of Reporting
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CROS - Subgroup 3 Data Quality Assurance
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CROS - Subgroup 4 Data Analysis
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CROS - Subgroup 5 Data Management
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CROS - Subgroup 6 Security and Confidentiality
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Edits Work Group
  • The EDITS Workgroup provides a formal mechanism to review and make additions/changes to edits and the NAACCR EDITS metafile.
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ICD-O-3 Implementation Task Force
  • The International Association for Research on Cancer (IARC) and the World Health Organization (WHO) approved additions, changes, and revisions to the International Classification of Diseases for Oncology, Third Edition (ICD-O-3) on September 1, 2011. The purpose of the ICD-O-3 Implementation workgroup is to define steps for implementation of the ICD-O-3 revisions, including an implementation date, and create an implementation guide.
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Implementation Guidelines Task Force
  • The Implementation Guidelines TF develops guidelines to implement additions/changes to Standards Volume II and registry operations.
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Inter-registry Data Exchange Task Force
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Interstate Case Ownership Task Force
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Minimum Data Set Task Force
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Pathology Reporting Work Group

  • The Pathology Reporting WG is developing additional guidance in Standards Volume V to address reporting of original pathology report information with biomarker and molecular laboratory test data.

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Pediatric Site-Specific Data Item WG

  • The Pediatric Site-Specific Data Item Work Group (Ped SSDI WG) oversees the development and maintenance of cancer registry pediatric data items recommended or required for collection for one or more cancer sites/histologies/schemas.

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Site Specific Data Item Work Group
  • The SSDI TF will review options for a data structure to accommodate existing prognostic factors and biomarkers as well as plan for proposed future data items and evaluate/modify the existing SSF content.
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Uniform Data Standards Work Group
  • The Uniform Data Standards Work Group provides a formal mechanism to review and recommend proposed changes in data codes and/or the addition of new items submitted by NAACCR members to ensure that data remain comparable among central registries and other standard setters. Further, the WG provides a formal mechanism for reviewing and recommending edits of NAACCR-approved data items.
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XML Data Exchange Work Group
  • The XML Data Exchange TF provides documentation, tools, and training to enable the NAACCR community to transition from the fixed-width data exchange standard to the NAACCR XML data exchange standard.
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Chairperson(s)
Jenna Deniaud
Ms. Heather Stabinsky
NAACCR Primary Staff Support
Lori A. Havener
  • North American Association of Central Cancer Registries
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Members
Peggy Adamo
  • National Cancer Institute
Wendy Aldinger
  • Pennsylvania Cancer Registry
Robin H Billet
  • Georgia Cancer Registry
Dr. Eric B. Durbin
  • Kentucky Cancer Registry
Stephanie M. Hill
  • North American Association of Central Cancer Registries
Jim P Hofferkamp
  • North American Association of Central Cancer Registries
Sandy Jones
  • Centers for Disease Control and Prevention
Mary Jane King
  • Ontario Cancer Registry
Karen Knight
  • North American Association of Central Cancer Registries
Lori Koch
  • Illinois State Cancer Registry
Mr. Gary M. Levin
  • Florida Cancer Data System
Joshua Mazuryk
Rich Pinder
  • Los Angeles Cancer Surveillance Program -USC
Winny Roshala
  • Cancer Registry of Greater California
Ms. Randi K. Rycroft
  • Cancer Data Registry of Idaho
Valerie A. Somma
  • Colorado Central Cancer Registry
Georgia Armenta Yee
  • Arizona Cancer Registry
Valerie Yoder
  • Utah Cancer Registry